Twins with Special Needs/Multiple Births If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Vascular Birthmarks If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Sight Loss in Children If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Heart Defects If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Advice for fathers Becoming a dad is a big change in your life. Being a dad to a disabled child involves more changes than you might have imagined, and it can feel overwhelming....
Innovative Medicines Fund launched to improve treatment access for rare conditions NHS England and NICE have announced the launch of the Innovative Medicines Fund (IMF) following an open consultation. What is the IMF? The IMF is a ringfenced fund that will...
Joubert syndrome Also known as: Joubert-Boltshauser syndrome Background Joubert syndrome is a rare neurological condition characterised by developmental delay, floppiness (see entry Hypotonia), ataxia (lack of muscle control) and difficulty controlling oculomotor...
Necrotising Fasciitis Background Necrotising fasciitis (NF) is a rare infection caused by bacteria and affecting deep tissue under the skin. Risk factors for infection include lowered immunity, eg people with diabetes mellitus,...
Stargardt Macular Dystrophy Also known as: Stargardt disease Background Stargardt macular dystrophy is the most common form of inherited macular dystrophy in young people. The macula is located at the back of the...
Duchenne Muscular Dystrophy Background Duchenne muscular dystrophy (DMD) is a muscle wasting condition, which gets worse over time. Muscle weakness occurs because of a genetic defect that prevents dystrophin, a protein in muscle,...
DfE confirms new year response to SEND review Consultation An open letter published today by Gillian Keegan MP, Secretary of State for Education, confirms the Department for Education (DfE)’s plans to publish its response to the SEND and Alternative...
Better Together Better Together Better Together is our series of fun and engaging activities popular with families with disabled children who might not always have had the opportunity to take part in....
What’s it like being a Contact trustee? Meet Angela, a Contact trustee We spoke to Angela about what’s involved in being a member of Contact’s Board of Trustees. How long have you been a trustee for Contact?...
Lewisham office Our team is here to help families in Lewisham feel valued, supported, confident and informed.
Lambeth office Get in touch Visit us: We Are 336, 336 – 338 Brixton Road, London, SW9 7AA Call us: 0203 751 3279 Email us: [email protected] Families can register themselves or a...
Change Makers Change Makers A community of parent carers banding together to get their voices heard and make a difference. “I have so much to give, but feel completely invisible as a...
Shoes and shoe-lacing tips Shoes and shoe-lacing tips If your child has hemiplegia, it is important that they have footwear that is practical, comfortable and help keep their affected foot in the best position...
Rare Disease Day 2022: advice for families as England launches first action plan Today is Rare Disease Day 2022 – an opportunity to raise awareness and generate change for the 300 million people living with a rare condition worldwide. To mark the occasion,...