The knock-on effects of the pandemic for children and young people with SEND can still be seen in the growing number of pupils who experience Emotionally Based School Avoidance (EBSA)...
A child may be described as having global developmental delay if they have not reached two or more milestones in all areas of development. What is Global Developmental Delay? Babies...
All schools will have to create an Individual Support Plan (ISP) for every child with special educational needs and disabilities (SEND) that clearly set out the help a child will...
We’d like to say a HUGE thank you to dads, Nick and Martin — the popular social media influencers behind The Smithy Family and Martin & Bex — for braving...
The partnership for Inclusion of Neurodiversity in Schools (PINS) programme is transforming how primary schools across England support neurodivergent children. This vital initiative brings together education, health, and parent carers...
If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Immunocompromised children aged six months and over in the UK will continue to be eligible for a Covid booster vaccine this autumn. Children aged over six months with chronic health...
As Co-production Week, 30 June – 6 July, comes to a close, we’re highlighting the work of SEND Power in Haringey, the local parent carer forum that stepped in when...
Laura and Aiden’s family Disability benefit changes, squeezed education, health and social care support for children with additional needs. Add to this a liberal sprinkling of parent blame, and it’s...
Background Necrotising fasciitis (NF) is a rare infection caused by bacteria and affecting deep tissue under the skin. Risk factors for infection include lowered immunity, eg people with diabetes mellitus,...
to health services.
The Department of Education (DfE) has opened a number of consultations for parents, carers and professionals to share their views on proposed changes. The school accountability reform consultation is asking...
Also known as: Early Infantile Epileptic Encephalopathy Background Ohtahara syndrome is a rare form of childhood epilepsy, which was first described by Ohtahara in 1976. It is one of several...
Also known as: Cockayne-Pelizaeus-Merzbacher disease Background Pelizaeus-Merzbacher disease (PMD) is a neurological disorder and involves the deficiency and loss of myelin (the white matter of the brain). Children with PMD...
62% of parent carers have given up work or reduced hours, on average losing £21,174 from their family income. Together with enormous energy bills and rising costs of getting a...
The Government has launched its Best Start in Life Strategy, which aims to drive up the accessibility of early years education in England and boost children’s life chances. Investments of...
If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
With the General Election just 3 weeks away, now is the time to ask your local parliamentary candidates to pledge their support to unpaid carers and disabled children if elected....