The Chancellor Rachel Reeves set out further cuts to benefits today, as part of the government’s Spring Statement. These cuts will affect some families with disabled children. All Universal Credit...
In December, we held a special event at the Royal Society in London where broadcaster, Jane Garvey spoke with national treasure, Paralympian and cross-bench Peer, Tanni, Baroness Grey-Thompson. Tanni told...
Contact’s very own Ellie and Lisa would love to see you on 13 March at the FREE Kidz to Adultz Exhibition at the Coventry Building Society Arena. Kidz to Adultz...
The General Election will be held on 4 July. This will be your chance to vote for who you want to represent you in Parliament. We have been hearing from...
This story applies to England only. Last week, parent carers attended our Facebook Q&A on Social Care, Rights & Processes to get expert, live advice from our parent advisers. And...
If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Also known as: TS Background Timothy Syndrome (TS) is a rare, multi-system condition caused by genetic changes in the L-Type calcium channel gene named CACNA1C. Individuals with Timothy Syndrome are...
If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Background Usher syndrome is a genetic condition that causes sensory neural hearing loss and retinosis pigmentosa (RP). Sensory neural hearing loss occurs because the sensitive hair cells inside the ear...
If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Background Vein of Galen malformation (VGM) is a rare arteriovenous malformation (AVM – an abnormal direct connection between arteries and veins) in the brain. High pressure blood flows directly from...
If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Background West syndrome is the term used to describe a type of epilepsy which most typically starts in the first year of life, between four and 8 months of age....
Also known as: Infantile Hypercalcaemia; Williams-Beuren syndrome Background Williams syndrome is a rare congenital (present at birth) condition that is caused by missing genetic material from chromosome 7. Individuals with...
Also known as: Congenital Suprabulbar Paresis Worster-Drought syndrome is a form of cerebral palsy. The main problems occur with the mouth, tongue and swallowing (bulbar) muscles being affected. There are...
XYY syndrome is a chromosomal condition which occurs only in males. A chromosome is a rod-like structure present in the nucleus of all body cells, with the exception of the...
Also known as: Di George syndrome, Conotruncal Anomaly Face syndrome, 2q11.2 Deletion syndrome, Velo-cardio-facial syndrome, Shprintzen syndrome. Background 22q11 deletion syndrome is caused by a small deletion in position 11...
Contact has called for a new legal framework for disabled children’s social care in our response to the Law Commission’s consultation on reforming support. We have set out our backing...