Join our FREE online event for families with children who have a rare condition

2 mins read

Tuesday 4 June 2024

Tags: free event, rare condition

If you care for a child with a rare condition please come along to our free online event on 12 June, 10-2pm.

This online conference is a rare opportunity for you to meet and share experiences with other parent carers and to hear from rare condition support groups who provide a lifeline to so many families across the UK.

Secure your free place using Eventbrite.

Attendees will also have the chance to try out some of Contact’s parent workshops, tailored for families caring for a child with a rare condition and covering topics like parent wellbeing and supporting siblings for example.

Contact’s work supporting rare families

Contact has always worked with families with rare conditions, bringing them together, providing advice and support, and highlighting the unique challenges they face.

Visit our rare conditions page for information on getting support for your child and your family.

Our A-Z of Medical Conditions has information on hundreds on conditions, including information on symptoms and possible treatments. It also includes details for support groups, which can be an invaluable source of condition-specific information and support.

Contact’s Rare Conditions Network

Thanks to funding from Pears Foundation, we created the Rare Conditions Network  and resources to support the charities who are part of our Rare Group Network. Our Rare Conditions Network toolkit includes advice on managing volunteers, guidance on using social media, and our group action pack.