Parents urged to help shape new Down Syndrome Act guidance

2 mins read

Tuesday 1 November 2022

The government department responsible for Health and Social Care in England is asking for evidence from the public to help develop its Down Syndrome Act guidance.

What is the consultation about?

The Down Syndrome Act 2022 aims to improve services and life outcomes for people with Down syndrome in England.

The consultation is seeking evidence about:

The two final questions of the consultation offer a chance to outline what other things you’d like to be included in the Down Syndrome Act guidance. This allows you to give your own feedback based on your own personal experiences.

Who is the government asking for evidence?

The government is looking to hear from:

  • People with Down syndrome.
  • People with other genetic conditions, including a learning disability.
  • Families and carers.
  • Professionals.

How to respond

If you’d like to take part, you have until 11.45pm on 8 November to have your say on what should be included in the guidance.

Take part in the online consultation survey online.

If you are unable to use the online system, you can write your views in a Word or PDF format (a maximum of 10 Pages). Email them to

Watch barrister Steve Broach’s webinar on the legal implications of the Down Syndrome Act.