Rare Conditions Network toolkit

This toolkit and the resources within it have been created to support the charities who are part of our Rare Group Network.

We hope this information provides you with answers to some of your queries about running small charities and gives you inspiration and ideas for new ways to do things and different areas to explore.

Resource topics

Managing volunteers

Resources to help you recruit and look after volunteers who help run your support group.

Managing volunteers

Social media

A presentation on how to engage with families of children with rare conditions online.

Download

Group Action Pack

Our set of resources for local parent support groups.

Group Action Pack