Rare group resources These resources have been created by rare groups themselves, for other groups to use or take ideas from. Resources School information pack – Action Duchenne A user-friendly guide created for schools talking about what the condition is, what good support looks like, and lots of practical advice. Download Activity book – The Aplastic Anaemia Trust An activity book designed to be printed and sent to young people and children, as well as being a resource. Download T-Kash transition tool – Alstrom Syndrome UK The transition knowledge and skills in healthcare transition tool is to support young people with rare conditions. view online Video and booklet for dads – Headlines Craniofacial Support This group work with families affected by craniosynostosis and rare craniofacial conditions. They created a short video and new booklet for dads, who may find it more difficult to seek support. view online ShareCopy URLCopied!Share via EmailShare via FacebookShare via TwitterShare via WhatsAppShare via LinkedIn
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