Success stories

6 mins read

Our examples of success stories provide more detail about how parent carer forums have worked to improve local services. 

Families in Partnership (FIP) Our Coproduction Journey in Worcestershire. 
As part of Coproduction Week 2020, we hear from Sally Keane, Chair of Families in Partnership about how the parent carer forum has developed since they were set up in 2017. We hear how working together with partners they have developed a coproduction culture in Worcestershire and the difference this has made to families of disabled children. Download the associated presentation

Every two years Lincolnshire PCF undertake a detailed survey of parent carers and SENCos. 
The findings help them evaluate SEND services and plan their work. The forum have also run information events on-line where those running services can hear directly from parent carers about their experiences 

Wiltshire Parent Carer Council (WPCC) working with strategic partners to improve services, information and support for families with disabled children during the Covid19 pandemic. 

How Cornwall Parent Carer Council reversed changes to the Transport Policy 

Gloucestershire Parent Carer Forum’s regular family bulletins 

Swindon SEND Family Voice – a parent carer forum based on Positivity (…and good PR!) 
It’s important that forums listen to the views of all local parents so that they know what’s important to them. In this blog, Chair of parent carer forum Swindon SEND Family Voice, Jacqui Watt, talks about their efforts to reach out to local families. See also  Swindon SEND Families Voice -Sunflower Lanyards [PDF]

Parent carer forums team up to improve health services 
Forums often work with health providers in the area, and this story from Family Voice Peterborough and Pinpoint Cambridgeshire is an example of this working well. This blog was written by Louise from Family Voice Peterbrough. 

How we got the best short breaks deal for local families 
Parent carer forums do really important work and can be instrumental in making sure families are at the heart of decision making. Often their achievements go unnoticed, so we invited Karen Russell, chair of Bedford Borough Parent Carer Forum, to blog about how her parent carer forum worked with the local authority to reverse a decision that would leave local families in a crisis situation.

Case studies 

Our case studies provide more detail about how parent carer participation has helped improve services. 

Bristol Children’s Hospital: Embedding parent participation – the different ways the hospital is involving parents in its work. 

Bristol Children’s Hospital: Computerised hospital passports – so all hospital staff are informed about a child’s additional needs. 

Hull working with the clinical commissioning groups and health watch – wheelchair service, diagnostic pathway for autism, support on sleep, child development centre, sharing information. 

Leeds support for families on common issues – sleep, behaviour, toilet training, eating. 

Redbridge bringing about transformational change – developing a coordinated and integrated child development service. 

Manchester Children’s Hospital: Improving hospital experience for children and young people with autism. 

Rutland: Finding solutions through dialogue with GP practice managers – improving experience for disabled children visiting their GP. 

Cornwall: Palliative care strategy – how the forum helped in co-production of a palliative care strategy. 

Birmingham Children’s Hospital: Improving the hospital experience – for children and young people who have a learning disability and their families. 

Birmingham Children’s Hospital: Harry’s story – how visiting hospital for Harry and his family improved, after the hospital improved the way they support children who have a learning disability and their families. 

Gloucestershire: Representing a diverse range of parent experience – how the parent carer forum doubled their membership and reached parents from a diverse range of background including parents from ethnic minority groups and parents living in isolated rural areas. 

Peterborough Family Voice working with LINk – how the parent carer forum improved the patient experience for disabled children while in hospital and worked with other community groups through their LINk to improve access to hydrotherapy for children and adults. 

Kirklees: Redesigning the child and adolescent mental health (CAMHS) service – commissioners developed a new service for children with learning disability and mental health issues based on what families said would help. 

Addenbrooke hospital – how parent carer forum worked with Addenbrooke hospital to improve the experience of visiting hospital for disabled children. 

Shropshire,Telford and Wrekin new hospital build – how parent carer forums are working with architects and planners to make sure the new hospital meets the needs of disabled children. 

Isles of Scilly: Working with health, education and social care – how the forum in the Isles of Scilly improved services by building a relationship with key people in health, education and social care. 

Brighton Compass Card – Amaze – provides information and support to families and collects data about families needs to assist the local authority in planning services. 

Commissioning short breaks in Redbridge – how parents, disabled children and young people helped to decide what short breaks would be on offer. 

Improving wheelchair and transport services Southend – parent carer forum helped develop a wheelchair service and monitor the service to make sure it continues to meet families needs. 

Improving local parks in Hull – how parents helped the local authority improve play facilities for disabled children in the local park. 

We need your success stories!

If you have a resource or good practice example which would be of interest to others please contact your regional adviser or email 

The Contact and NNPCF parent carer participation newsletter (England) 

Contact and the National Network of Parent Carer Forums (NNPCF) produce a joint parent carer participation newsletter:

This newsletter contains key information about the development of parent carer participation, information about important changes across health services, special education and social care in England, news for local forums, the latest news from the NNPCF and opportunities for forums to participate. Sign up for the parent carer participation joint newsletter.