Epidermolysis Bullosa Background Epidermolysis bullosa (EB) is the term used to describe a number of genetically determined disorders whose principal characteristic is skin and/or mucous membrane fragility (for example in the mouth...
Carer’s assessments in England: What are they and how do you get one? Find out at our special Q&A session on carer’s assessments in our closed Facebook Group!
Practitioner development courses We can host all our courses for small or large groups, virtually as a webinar or workshop and of course in-person too.
Children with hemiplegia in school – tips and advice for teachers and others supporting your child Children with hemiplegia in school – tips and advice for teachers and others supporting your child You can now direct your child’s teachers, paediatricians, therapists, learning support assistants and others...
Rett syndrome Background Rett syndrome is a condition that affects the nervous system, causing problems with learning and development. It affects girls almost exclusively. Although the syndrome is present from birth, symptoms...
Families still struggling to access support despite lockdown easing Health and therapy services are still not reaching disabled children and families, new research from the Disabled Children’s Partnership (DCP) shows – despite government assurances that these services are supposed...
What does the emergency Coronavirus bill mean for disabled children? The emergency Coronavirus Bill was published yesterday (19 March 2020) by the government.
How to set up a Facebook Fundraiser How to set up a Facebook Fundraiser Thank you for your interest in setting up a Facebook Fundraiser for Contact. It only takes a couple of minutes to do. Step...
80,000 disabled young people in England and Wales are locked out of their own savings worth £210 million New figures exclusively revealed by the BBC show that 80,683 disabled young people in England and Wales will miss out on Child Trust Fund savings worth £209,801,255. Parent campaigner Andrew...
Holiday time… is fast approaching or already here! School summer holidays have started in Scotland and are on the horizon in England, Wales and Northern Ireland. We have updated our holiday web pages recently which include information about...
Universal Credit campaign Universal Credit campaign 100,000 families with disabled children will be worse off by more than £2,290 per year as a result of the 50% cut to the lower child disability addition under Universal...
Long QT syndrome Also known as: Jervell-Lange-Nielson syndrome; Romano-Ward syndrome Background Long QT syndrome is a rare congenital condition. An affected child or person may not realise there is anything wrong until they...
Disability Living Allowance and other benefits Disability Living Allowance (DLA) helps cover the extra costs that result from having a disability and is the main benefit for disabled children. However, getting DLA can also lead to...
Free School Meals campaign shortlisted for Charity Award Contact is delighted that the free school meals campaign led by parent campaigner Natalie Hay, has been shortlisted for a Charity Award in the disability category. Our research found 164,000...
Lesch Nyhan syndrome Also known as: HPRT Deficiency; Hypoxanthine Guanine Phosphoribosyl Transferase Deficiency Background Lesch Nyhan syndrome is a very rare genetic condition usually occurring in boys. It is caused by virtually complete...
TAR syndrome Also known as: Thrombocytopenia and Absent Radius Background Platelets are small, clear bodies in the blood that allow it to clot. In thrombocytopenia and absent radius (TAR) syndrome, there are...
Landau-Kleffner syndrome Background Landau-Kleffner syndrome (LKS) is a rare type of childhood epilepsy, in which children develop normally, for at least the first two to three years of life, and then show...
Contact’s BBC Radio 4 Appeal: Transcript of Jane Garvey’s recording Contact’s BBC Radio 4 Appeal: Transcript of Jane Garvey’s recording During my time as a broadcaster and journalist I’ve met many families with disabled children. And they all seem to...