Charcot-Marie-Tooth disease (CMT) Charcot-Marie-Tooth disease (CMT) is a genetic disorder characterised by slowly progressive muscular weakness. The onset of the condition may be from childhood to late middle or old age, but most...
Payment of DLA for a child in hospital This advice applies in England, Northern Ireland and Wales. Read about Child Disability Payment in Scotland. The rules for claiming Disability Living Allowance (DLA), and some other benefits, for children...
Autumn Covid booster campaign launches The NHS has launched its autumn Covid-19 vaccination booster programme and from this week will begin inviting eligible people to book a booster appointment. Who is eligible? The following groups...
Making friends Tips to help your child meet people There are ways around these obstacles. Although it can be difficult, there is no reason to think your child can’t develop meaningful friendships...
Chronic Granulomatous disorder Background Chronic granulomatous disorder (CGD) is rare genetic condition that prevents the immune system working properly to fight off bacterial and fungal infections. People with CGD carry a gene, which...
How is our medical information checked? The information on each medical condition has been reviewed by a medical expert in the field, usually consultant level or equivalent. With some very rare conditions, there may only be...
Clinically vulnerable children start to get invited for vaccine The NHS has written to local health networks asking that clinically vulnerable children are vaccinated before school starts in September. We understand that the NHS is still trying to get...
Free eye test boost for pupils in England special schools Around 165,000 pupils in England’s special schools will receive free NHS eye testing in their school setting from next year, the government has confirmed. The government’s NHS Long Term Plan...
SEND Review Green Paper and consultation: Naming a school on an EHC plan We’ve been taking a more detailed look at the government’s proposals outlined in the SEND Review Green Paper to make it easier for you to tell the government what you...
Social Media and Online Communities Officer Social Media and Online Communities Officer Contract: Permanent contract Hours: 35 hours per week Salary: £31,364 – £34,834 (plus London weighting for hybrid candidates) Location: Home-based or hybrid working (at least two...
Down syndrome Also known as: Down’s syndrome; Trisomy 21 In the UK, around one in every 1,000 babies is born with Down syndrome. Anyone can have a baby with Down syndrome, and in...
Christmas opening hours for our advice helpline Our helpline will close at 5pm on 23rd December and will re-open on Tuesday 3rd January 2023 from of 10.15am – 5pm. You can find lots of advice and support...
Have your say on eye testing in special schools NHS England is hosting a free public engagement webinar for parent carers on Tuesday 3 October between 12-1pm to share its plans for expanding free eye testing in special schools...
Universal Credit for disabled students: your top 5 questions answered Last week, our family finance advisers ran a special Facebook Q&A on claiming Universal Credit (UC) for a disabled young person in education – and it’s safe to say it...
Carers in England and Wales providing more hours of care than 10 years ago Unpaid carers – including parent carers – are providing more hours of care now than they were 10 years ago. That’s according to the latest census data by the Office...
Applications for final Self Employment Income Support grant close tomorrow If you’re a self-employed person whose business has been adversely affected by Coronavirus you might be eligible for the fifth and final grant made under the government’s Self Employment Income...
Latest report on why people with learning disabilities die prematurely People with learning disabilities continue to die prematurely although there are some early signs of improvements according to the latest report from the Learning Disabilities Mortality Review (LeDeR) programme published...
Have you told the government what you think about the SEND review green paper yet? We’ve taken a closer look at the SEND Review Green Paper – a discussion document which sets out the government’s plans to improve the SEND system in England. Over the...