Equity, diversity & inclusion Equity, diversity & inclusion Equality, diversity and inclusion (EDI) is integral to the work that we do, and we are committed to achieving this at all levels of our organisation....
“I had literally no idea how dangerous a common cold could be for my newborn. I wish I’d know about RSV” Mum Becky Whinnerah from Devon shares her story of when, at just 5 days old, her daughter Ava developed serious breathing problems after catching a winter cold which developed into...
Klinefelter syndrome Klinefelter syndrome was first described in 1942 by Dr Harry Klinefelter and colleagues. It is a chromosomal abnormality that only occurs in 1 in 500 to 1,000 newborn boys. A...
London Marathon This is it – the world’s biggest fundraising event! On Sunday 27 April 2025, 50,000 runners will have the chance to be a part of the biggest marathon ever staged...
Ménière’s disease If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Contact calls for free school meals voucher scheme for disabled children We’re happy to be supporting a parent-led campaign calling for food vouchers for eligible disabled children unable to access free meals at school. About the campaign Natalie Hay, a parent...
Relationship breakdown and separation On this page we look at some of the legal and practical issues that you might face if your relationship is breaking down or you and your partner separate. Relationship...
Dyscalculia Also known as: Mathematics Learning Difficulty Dyscalculia is a specific learning disability that affects a person’s ability to acquire arithmetical skills. Research suggests that dyscalculia has varying levels of severity...
Fanconi Anaemia Also known as: Fanconi’s Anaemia Background Fanconi anaemia (FA) is an inherited genetic condition, which can lead to lead to aplastic anaemia (where the bone marrow is unable to produce...
Britain-wide “managed migration” to Universal Credit roll-out to start in June 2023 The national roll-out of managed migration – the process of replacing legacy benefits with Universal Credit for existing claimants – will extend to the Greater Manchester, East Yorkshire and Humber...
Parent Carer Participation Adviser Parent Carer Participation Adviser Salary: £31,099 – £34,723 pro rata; actual salary £28,433 – £31,747. Hours: 32 hours per week Contract: This is a fixed term contract until 31st March...
Family Worker Family Worker Join us! Contact is a national charity for families with disabled children. We provide information, advice and support, and bring families together, so they can support each other....
Mental Health If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Gaucher disease Also known as: Cerebroside Lipidosis syndrome; Gaucher’s disease Background Gaucher disease is an inherited metabolic condition. It is caused by a deficiency of an enzyme called glucocerebrosidase, which normally breaks...
Children’s social care consultation event The government is currently consulting on changes to its social care statutory guidance called Working Together to Safeguard Children in England. We want to make sure families with disabled children can share...
Fresh NHS treatment hope for clinically vulnerable children who test positive for covid Children aged 12 and over at highest risk of getting very sick with Covid-19 can now get new treatments if they test positive for coronavirus . The NHS is writing to...
Cerebellar Ataxia Background Ataxia refers to problems affecting the fine control of posture and movement/balance, resulting in poor coordination. Ataxia is a symptom which can be due to many different causes. As...
National Living Wage to increase but Carer’s Allowance earnings limit frozen From tomorrow the National Living Wage for over 23s will increase to £8.91 per hour. While this is good news for many people in low paid work, it may not...