Contact joins charities calling on PM candidates for immediate help for families Contact, Scope and Together for Short Lives have today published an open letter to the Conservative Party Leadership candidates calling for urgent action to address the mounting hardship facing families...
Out of Energy: Tell the government to act now UK households with disabled children fear £3,000 energy bills from April will worsen their child’s condition, our new #OutofEnergy research, published today, has found. Average annual energy bills for these households...
Hypoplastic Left Heart syndrome Background Hypoplastic left heart syndrome (HLH) is a severe form of congenital heart disease in which the left-sided structures of the heart (mitral valve, left ventricle aortic valve, and aorta)...
What to do if your eligible child hasn’t been invited for a Covid vaccine yet Vulnerable children aged 12-15 eligible for a Covid vaccine should have received an invitation for their first appointment by the end of yesterday, Monday 23 August. NHS England has asked...
What we do Read about the wide variety of work that we do to support families with disabled children.
Contact calls for government to cancel disabled household energy rebate recovery We are telling the government not to ask disabled households to repay their energy bills rebate, as part of a technical consultation on its Energy Bills Support Scheme (EBSS). The...
Putting things right – Northern Ireland If you have a complaint about some aspect of your child’s healthcare, you can raise it with the Complaints Manager at the Health and Social Care Trust responsible for the...
School transport for disabled children in England: top 5 questions answered The new school term is just around the corner, yet many parent carers are still facing major hurdles to secure transport arrangements for their disabled child. School transport is a...
Respiratory syncytial virus (RSV) Questions and answers to help you protect your child from the Respiratory syncytial virus (RSV).
Anxiety disorders Background Anxiety can be defined as a disproportionate feeling of worry, nervousness, or unease about something with an uncertain outcome. It can be brief, often in response to a frequently...
Auditory Processing disorder Background To be able to hear well we need to have a normally functioning hearing system – outer, middle and inner ear, hearing nerve and part of the brain that...
Cot Death Also known as: Sudden infant death syndrome (SIDS) Background Cot death is the sudden and unexpected death of a baby for no obvious reason. The post-mortem examination may explain some...
Help returning to work Sometimes parents with disabled children are made to feel like they are ‘expected’ to stay at home and care for their child. However, with support, some parents do manage to...
Primary Ciliary Dyskinesia Background Primary ciliary dyskinesia (PCD) is a relatively rare genetic condition. Several genes for the condition have been found, and more are being sought. The prevalence is almost certainly underestimated....
Congratulations to our two newest parent carer lottery winners! A huge congratulation to Georgia from Liverpool and Tessa from Crawley, our latest £1,000 Contact Weekly Lottery winners! Georgia and Tessa matched five numbers to take the jackpot. They join...
Sturge-Weber syndrome Background Sturge-Weber syndrome (SWS) is a neurocutaneous syndrome, meaning it affects both the skin and central nervous system. SWS is characterised by an abnormality of the blood vessels on the...
Apert syndrome Background Apert syndrome is a rare genetic condition characterised by abnormal craniofacial (skull and face) development and severe fusion of skin and bones between the individual fingers and toes. Credits...
Baroness Grey-Thompson backs free school meals campaign Baroness Tanni Grey-Thompson has used a written question to the Department for Education (DfE) to cite our research that a third of eligible disabled children are not able to access...