Dermatomyositis and Polymyositis Background Juvenile Dermatomyositis (JDM) and Polymyositis (JPM) are rare ‘autoimmune’ diseases. The immune system is a group of cells that usually protect the body from infection. In an autoimmune disease...
Free School Meals campaign shortlisted for Charity Award Contact is delighted that the free school meals campaign led by parent campaigner Natalie Hay, has been shortlisted for a Charity Award in the disability category. Our research found 164,000...
Landau-Kleffner syndrome Background Landau-Kleffner syndrome (LKS) is a rare type of childhood epilepsy, in which children develop normally, for at least the first two to three years of life, and then show...
Obsessive Compulsive disorder If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Contact’s BBC Radio 4 Appeal: Transcript of Jane Garvey’s recording Contact’s BBC Radio 4 Appeal: Transcript of Jane Garvey’s recording During my time as a broadcaster and journalist I’ve met many families with disabled children. And they all seem to...
Spina Bifida If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Tourette syndrome If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Carer Poverty Coalition launches Manifesto 2024 Today, along with 130 other members of the Carer Poverty Coalition, we have launched a joint manifesto. We’re calling on all political parties to commit, ahead of an upcoming General...
Chiltern 50 Challenge This end of season 50 km looped route covers some of the best of the Chilterns countryside, with historic trails, rolling hills, nature reserves, and fantastic views. Starting & finishing...
Halloween Walk This Halloween – why not treat yourself to a hair-raising hike around some of the City’s scary streets and historic haunts? Choose your distance, gather your bravest guys & ghouls...
London to Paris Cycle Challenge This awesome cycling challenge will push you to your limits but most of all, you will make memories that will last you a lifetime! You’ll spend 4 days in the...
Improving services Key statistics Parent carer forums involvement in shaping health services, 2014 [PDF] Latest research into parent carer forums’ experiences of working with health services in England, including clinical commissioning groups,...
Niemann-Pick disease Background Niemann-Pick disease is an inherited metabolic condition which affects the body’s ability to breakdown, transport, and use fats and cholesterol (lipid metabolism). In people with this condition, abnormal lipid...
Calls intensify for energy social tariff The average annual energy bill will drop to £1,923 in October for households in England, Scotland and Wales, the UK energy industry watchdog Ofgem has announced. The energy price cap...
Acute Disseminated Encephalomyelitis Background Acute disseminated encephalomyelitis (ADEM) is an inflammatory disorder affecting the brain (enceph-) and/or spinal cord (myelitis). It is a rare condition mostly affecting children and is usually monophasic meaning...
Latest report on why people with learning disabilities die prematurely People with learning disabilities continue to die prematurely although there are some early signs of improvements according to the latest report from the Learning Disabilities Mortality Review (LeDeR) programme published...
Making friends Tips to help your child meet people There are ways around these obstacles. Although it can be difficult, there is no reason to think your child can’t develop meaningful friendships...
Polycystic Ovary syndrome Also known as: Stein-Leventhal syndrome Background The ovaries are a pair of glands that make ova (eggs) and various hormones. Ovulation normally occurs once a month when a woman releases...