MPs warn nearly a million teens missing out on savings in Child Trust Funds A new report from the Public Accounts Committee (PAC) – a group of cross-party MPs – has found that nearly a million young people are missing out on savings in...
Parents of clinically vulnerable children voice concerns over lifting of restrictions today in England Parents of clinically vulnerable children have told us of their concerns over restrictions being lifted in full today in England. From today: It will not be a legal requirement to...
How to set up a Facebook Fundraiser How to set up a Facebook Fundraiser Thank you for your interest in setting up a Facebook Fundraiser for Contact. It only takes a couple of minutes to do. Step...
Rubinstein-Taybi syndrome Also known as: Broad Thumb-great Toe syndrome Background Rubinstein-Taybi syndrome (RTS) is a rare genetic condition, characterised by distinctive facial and physical differences. The most striking physical feature is broad,...
Universal Credit campaign Universal Credit campaign 100,000 families with disabled children will be worse off by more than £2,290 per year as a result of the 50% cut to the lower child disability addition under Universal...
Pathological Demand Avoidance Pathological Demand Avoidance (PDA) is now widely understood to be part of the autism spectrum. Individuals who present with this particular diagnostic profile are driven to avoid everyday demands and expectations...
Cavernoma Also known as: Cavernous Angiomas; Cavernous Hemangiomas; Cerebral Cavernous Malformations Cavernomas have been known about since the middle of the nineteenth century, when they were seen by pathologists examining brains...
Encephalitis If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Gorlin syndrome Also known as: Basal Cell Nevus syndrome; Gorlin-Goltz syndrome; Nevoid Basal Cell Carcinoma syndrome Background Gorlin syndrome is an inherited predisposition (increase in risk) to develop multiple basal cell carcinomas...
Health news & updates Information for forums NHS Long Term Plan The NHS Long Term Plan was published in January 2019 and outlines priorities and areas of work that the NHS as a whole...
Batten disease Also known as: Jansky-Bielschowsky disease; Kufs disease; Neuronal Ceroid Lipofuscinosis; Santavuori disease; Santavuori-Haltia disease; Vogt-Spielmeyer disease Background The group of diseases known as Batten disease or the neuronal ceroid lipofuscinoses...
Abdominal Migraine Abdominal migraine is an idiopathic disorder (one in which a cause cannot be identified) seen mainly in children. The symptoms are recurrent episodes of pain in the middle of the...
The Scottish Child Payment – episode transcript Hi. My name is Derek and I’m an adviser on Contact’s free Helpline for families with disabled children. This podcast is about the Scottish Child Payment a benefit for low...
Primary Immunodeficiencies If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range...
Nephrotic syndrome If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Migraine If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Behcet’s syndrome Also known as: Behcet’s disease Background If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get...
Brain Tumours If your child is affected by a disability or medical condition we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...