South Gloucestershire Parent carer forum help develop ground-breaking initiative on Emotionally Based School avoidance The knock-on effects of the pandemic for children and young people with SEND can still be seen in the growing number of pupils who experience Emotionally Based School Avoidance (EBSA)...
Arthritis (Juvenile Idiopathic) Also known as: Juvenile Idiopathic Arthritis Background Arthritis is inflammation of the joints, causing them to be swollen, painful and stiff. Juvenile idiopathic arthritis (JIA) affects children under 16 years...
Mental Health If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
22q11 Deletion syndrome Also known as: Di George syndrome, Conotruncal Anomaly Face syndrome, 2q11.2 Deletion syndrome, Velo-cardio-facial syndrome, Shprintzen syndrome. Background 22q11 deletion syndrome is caused by a small deletion in position 11...
Cotswold Way Challenge The magical Cotswold Way provides a stunning setting for a testing challenge-with some fantastic views en route and tough hills in between! It’s a Saturday morning start from historic Cirencester,...
Thames Path Challenge Take on the Thames Path Challenge following England’s greatest river. Most will walk, many will jog, some willrun, and all havespecial reasons to push themselves. Our full Thames Path Challenge...
Lake District Challenge Walk, Jog, or Run the Lake District Challenge and take on England’s finest countryside at your pace. Test yourself on a fantastic Ultra Challenge-suitable for all experience levels-and you’ll get...
London 2 Brighton Challenge 2,000 adventurers of all experience levels & ages will take on a classic capital to coast route, testing their grit over the Bank Holiday weekend. Most will Walk, but many...
Dravet syndrome Also known as: Severe Myoclonic Epilepsy of Infancy Background Dravet syndrome is a rare and severely disabling type of childhood epilepsy. The condition was first described in 1978 by Charlotte...
Celebrating families Our Awards are a celebration of the countless and often unrecognised achievements of families with disabled children. We have had hundreds of nomination, and we think every one should be...
South West Coast 50 Challenge Taking in the initial section of the stunning & famous 630 mile Coastal Path, which officially starts in Minehead, and close to our extensive ‘base-camp’ in the shadows of the...
Maternity, paternity and adoption rights Find out about your rights when having a baby, including adoption leave, and statutory shared parental leave. Your rights when having a baby As an employee you may also be...
Familial Spastic Paraplegia Also known as: Familial Spastic Paraparesis; Hereditary Spastic Paraplegia; Strümpell-Lorrain disease Background Familial spastic paraplegia (FSP) describes a group of largely progressive conditions predominantly affecting the legs. At a clinical...
Common questions about getting extra help in mainstream schools This advice applies in Wales only. Read information for families in England, Northern Ireland or Scotland. Changes to the education system in Wales A new system of support for children...
Consultancy Our consultancy team are here to listen to your needs and work with you to find a solution that suits your ambitions.
Education in England Parent information about education support for children and young people with additional needs and disabilities.
Diabetes – Monogenic Diabetes Also known as: Familial Diabetes; Neonatal diabetes Background Monogenic diabetes (diabetes caused by a genetic change in a single gene) affects approximately 2 per cent of cases of diabetes in...
Invite your MP to the Free School Meals debate Contact has secured an important debate in Parliament! The debate will be about the thousands of children missing out on a free lunch due to their disability, sensory or dietary...