Continuing care
Continuing care is an NHS-funded care package for children and young people aged under 18 with complex health needs arising from illness or disability.
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Paying people in the forum
Information for forums about paying people including staff, self-employed and volunteer expenses.
Collecting parent carer voice
Information useful for forums on how they can gain the voice of parent carers in their area.
Roles and responsibilities
Information to support forums with the development of its roles and responsibilities. Including example job descriptions and videos about different forum roles.
National Network of Parent Carer Forums (NNPCF)
In this section, we look at the role of the NNPCF that all forums are a member of.
Guardianship, intervention orders and powers of attorney in Scotland
If you are the parent or carer of someone over 16, who needs help to make, communicate or carry out decisions, there are three ways to ensure you can act...
Going to university
This advice applies in Scotland only. Explore university options for disabled students. Find out about entry requirements, support services and living away from home. Studying at university level Most people going...
Planning for transition in Scotland
Guidance on planning for transitions into adulthood in Scotland, including additional needs in education, work, and independent living.
Case study: Finding paid work
Case study: Finding paid work Twin brothers Stuart and Matthew have Fragile X syndrome, a genetic condition that causes learning disabilities. Neither can read or write well, and they can...
Managing finances
Managing finances This advice applies in Scotland only. Financial planning Planning is the best way to be sure you’re dealing with the most important things. It also helps you prepare...
Children’s continuing care campaign
Over half of the most sick and disabled children in England referred for NHS-funded continuing care support have been rejected. Many families who get children’s continuing care packages live in...
The schools white paper & SEND reforms
What you need to know about the government's schools white paper and planned reforms to special educational needs (SEN) in England.
Completing the PIP questionnaire
As part of claiming Personal Independence Payment (PIP), your child, or you acting as their appointee, will need to complete a questionnaire. This is called How Your Disability Affects You,...
What to expect from a Universal Credit managed migration notice
Over the next few years, the Department for Work and Pensions (DWP) will ask all legacy benefits claimants to claim Universal Credit instead. This part of the process of rolling...
Three ways the next government can improve England’s education system
Latest figures from the Department for Education show there are more than 1.6 million pupils in England with special educational needs (SEN), an increase of 101,000 since 2023. The number includes...
Once in a lifetime chance to make disabled children’s social care work
The Law Commission has today launched its long-awaited consultation on reforming social care law for disabled children in England. The consultation, led by Commissioner Alison Young, is part of a...
Law Commission recommends radical reform of disabled children’s social care law
The Law Commission has today published its final report on reforming disabled children’s social care. The report calls for a new legal framework, national eligibility criteria and a legal duty...
Solving the SEND crisis: Contact’s analysis
Today the Education Select Committee has published a report from its inquiry, Solving the SEND crisis in England. We welcome this detailed report which puts families at its heart. It...