Multiple Epiphyseal Dysplasia
Background Multiple epiphyseal dysplasia (MED) is a rare, inherited, skeletal dysplasia caused by a malformation of the growing ends of the long bones. A skeletal dysplasia is a condition of...
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Your views wanted on our advice service!
If you’ve used our information and advice service, we’d love to know what you think! We’re running a feedback survey throughout March. It takes only five minutes to complete, and...
DLA Higher Rate Mobility for children with behavioural issues: your Top 5 questions answered
This month our Family Finance Team ran another busy Q&A session about how to claim the higher rate mobility (HRM) component of Disability Living Allowance (DLA) for children with autism spectrum conditions or learning...
9/10 families unable to find suitable holiday club for their disabled child this summer
BBC News have exclusively revealed our new findings that show nine out of 10 families have been unable to find a suitable holiday club or activity for their disabled child...
Summer holiday strategies for your family
We know that schools can provide routine and structure for many children with additional needs. When this routine stops, for example in the school holidays, some children can find the...
No transitional protection for families with looked-after children moving onto Universal Credit
Contact is deeply concerned that families asked to claim Universal Credit under managed migration will be left much worse off if they have a disabled child who is “looked after”...
DCP launches Manifesto 2024
The Disabled Children’s Partnership (DCP), chaired by Contact CEO Anna Bird, is proud to launch its Manifesto 2024. A Manifesto for Disabled Children and their families sets out what the...
Families with children who are “looked after” by their local authority will be much worse off under Universal Credit
Families asked to claim Universal Credit under managed migration will be left much worse off if they have a disabled child who is “looked after” by their local authority in a residential...
School attendance figures in England reveal more children with an EHC plan are out of school
New figures from the government show that the number of children in England with an Education, Health and Care plan being educated at home has risen by 34% in the...
Parent carers call out a lack of accountability in education system
The lack of accountability is now a common phase in the battle to fix the special educational needs and disability (SEND) system in England (and no doubt elsewhere in the UK)....
MPs discuss “broken” SEND system in need of reform
Last week saw three Westminster Hall Debates on special educational needs and disability (SEND) provision in England. The first two debates, led by Sarah Dyke and Alistair Strathern, focused on...
Covid inquiry asks for parent carer stories
The Covid Inquiry will be looking into the impact of the pandemic and the Government’s Covid response on children and young people in its next phase. As part of this,...
DCP reports highlight need to focus on disabled families and racial disparities in support
Two new reports from the Disabled Children’s Partnership (DCP) call on the government to put disabled children at the heart of decision-making – and focus on Black and Asian ethnic...
Have your say on how to fix the NHS to make it work better for disabled children
The government has opened a major consultation on the future of the NHS, inviting everyone to suggest ways to improve our health service. Launching the “national conversation”, Prime Minister Keir...
Sign up to a focus group and have your say on improving social care
We are running two focus groups in November to hear parent carers views on the Law Commission’s proposals for reforming the law governing disabled children’s social care in England. The focus...
Solving the SEND crisis inquiry seeks your views
A cross-party group of MPs called the Education Select Committee is undertaking an inquiry on finding short and longer term solutions to the crisis in special educational needs and disabilities (SEND) provision...
Carer’s Allowance overpayments – tell us more!
Last October the government announced an independent review into the overpayment of Carer’s Allowance related to earnings. Contact’s Counting the Costs 2024 research found those of you getting Carer’s Allowance,...
Contact responds to another report highlighting the SEND emergency
Today the Public Accounts Committee has published its report into the SEND emergency together with recommendations for addressing it. Angie Fenn, Contact’s Head of Information and Advice, said: “Today’s report...