Demand action from Chancellor ahead of the Spring Budget
Ahead of the Spring Budget on 6th March, parent carer Samantha has written to the Chancellor demanding action on sky-high energy and living costs that continue to hit families with...
Showing 55 - 72 of 102 for "3, asks"
Energy price cap drop not enough for parents like Samantha
Energy prices will drop by £238 a year from 1 April for households in England, Scotland and Wales, the energy regulator Ofgem has announced today. The energy price cap will...
Mum Samantha talks to BBC ahead of Spring Budget
Parent carer Samantha, who has written to the Chancellor asking for more help for disabled households, has made a powerful film for BBC News to share her demands. The BBC...
Our social care asks ahead of Law Commission consultation
Next month we expect the Law Commission to publish a consultation on proposals to reform disabled children’s social care in England. The Law Commission aims to ensure the law is...
Government announces £780m SEND capital funding
The Secretary of State for Education, Bridget Phillipson, has this week announced extra capital funding to help mainstream schools in England better support children with special educational needs and disabilities...
Families call for radical reform of disabled children’s social care law
Contact has called for a new legal framework for disabled children’s social care in our response to the Law Commission’s consultation on reforming support. We have set out our backing...
‘Your voice’ ahead of summer social care report
Through Your Voice, we provide parents with a platform to respond to current hot topics from their own lived experience. Together, we can make sure parent’s concerns are front and centre...
Disabled children too often subject to intrusive child protection investigations
A major new study has found disabled children and their families are disproportionately put through invasive safeguarding investigations. The study in the Journal of Social Work suggests disabled children and...
Government consults on school medical conditions guidance
The Department for Education (DfE) is consulting on updated statutory guidance for supporting pupils with medical conditions and allergies in schools. The draft guidance is for schools and is an update to...
Council report lets down disabled children
Contact’s policy officer, Imogen Steele has given give her assessment of the ISOS Partnership report (England) published today. The report, commissioned by the Local Government Association and County Council Network,...
England’s special educational needs system in urgent need of reform, NAO report finds
The National Audit Office has today published a report into the Special Educational Needs (SEN) system in England. The report says the system is not delivering better outcomes for children,...
Publication of Schools White Paper delayed until early 2026
The Department for Education has confirmed a delay to the publication of the Schools White Paper for England, which is now expected early next year, to allow for a further...
Ellis-van Creveld syndrome
Also known as: Chondroectodermal Dysplasia; Mesoectodermal Dysplasia Background Ellis-van Creveld syndrome (EvC) is a rare inherited bone growth disorder, which results in short stature. It is also characterised by the...
Fragile X syndrome
Fragile X syndrome is the most common identifiable cause of inherited intellectual disability and autism spectrum conditions. It arises from changes on the X chromosome in a specific gene that...
Majewski Osteodysplastic Primordial Dwarfism Type II
Also known as: MOPD II Background Majewski osteodysplastic primordial dwarfism type II (MOPD II) is a form of primordial dwarfism, which is the name given to a group of disorders...
Multiple Epiphyseal Dysplasia
Background Multiple epiphyseal dysplasia (MED) is a rare, inherited, skeletal dysplasia caused by a malformation of the growing ends of the long bones. A skeletal dysplasia is a condition of...
Your views wanted on our advice service!
If you’ve used our information and advice service, we’d love to know what you think! We’re running a feedback survey throughout March. It takes only five minutes to complete, and...
DLA Higher Rate Mobility for children with behavioural issues: your Top 5 questions answered
This month our Family Finance Team ran another busy Q&A session about how to claim the higher rate mobility (HRM) component of Disability Living Allowance (DLA) for children with autism spectrum conditions or learning...