Caring More Than Most
A quarter of UK parents of disabled children provide an unimaginable 100 plus hours of care every week.
This is the equivalent of working three full-time jobs simultaneously and without any of the usual benefits like regular or sick pay, holidays or a pension.
These are the findings of our Caring More Than Most report [PDF] (download the executive summary [PDF]), which shows disabled children and their families are at a significant disadvantage in many key aspects of life including their economic situation, health, employment and housing.
Help us stop the never-ending cycle of disadvantage families face. Make a donation to our Caring More Than Most appeal
Caring More Than Most, conducted with the University of Leeds, finds that:
When compared to non-disabled children, disabled children are:
- Twice as likely to live in a home where there is no parent in paid work (34% compared to 17%).
- More likely to live in a lone parent household.
- More likely to live in a household without a car, in a home without central heating and in overcrowded accommodation.
When compared to other carers, parent carers are:
- Twice as likely to care for 100+ hours a week (24% compared with 12%).
- More likely to have financial difficulties (36% compared 21%).
- More likely to report problems with their own health.
Caring More Than Most highlights a marked and unacceptable difference between the quality of life and opportunities available to disabled children and their families compared to those without disabilities.
What we want
- The government to plug the £1.5 billion funding gap in disabled children's services that is leading to families caring more than most.
- Local authorities and health groups to stop cutting disabled children's services such as short breaks
What we're doing
- Our CEO, Amanda Batten, formed and chairs the Disabled Children's Partnership, a growing coalition of more than 60 charities and families. In June 2017 we launch the Secret Life of Us campaign.
- The Secret Life of Us campaign is calling on the government to address this growing crisis in health and social care for disabled children.
- We are also campaigning to improve financial support and childcare for disabled children
What you can do
- We are a charity, and our work to tackle the inequality faced by families with disabled children depends on donations from our generous supporters. Help us stop this never-ending cycle of disadvantage. Make a donation to Contact
Find out more about the Caring More Than Most report on our research page.