Health news and updates

This page will be updated regularly with any health related information that may be useful to parent carer forums or their wider membership.

If you know of something that you think might also be useful to other parent carer forums, please contact

NHS 10 Year Plan - have your say

Recent announcements of extra funding for the NHS in its 70th birthday year could mean that children's services and mental health become a priority for the NHS. This could mean that additional funding is directed towards improving children's services. The NHS has been asked to develop a 10 year plan where the detail of these priorities will be published in the autumn. There is the opportunity to have your say about the development of the plan. The consultation is open until 30th September. There is both a consultation guide and online response form on the NHS England engagement webpage.

My Care Transfer - digital care planning tool

Together for Short Lives has developed a new digital planning tool. It is for children, young people and their families to feel confident that their immediate needs are communicated to staff they may not have met before. To find out more, have a look at their website:

NHS England publishes Quick Guides

NHS England has recently published two Quick Guides to aid health commissioners and providers with joint commissioning of services and provide guidance on developing processes to ensure that children and young people with SEND are fully supported.

The guides are:

1) Guidance for health services for children and young people with Special Educational Needs and Disability (SEND).

2) Commissioning for transition to adult services for young people with Special Educational Needs and Disability (SEND).

You can find the guides on NHS England's SEND pages.

Impact of austerity on services for disabled children

Recently published is the report of a Europe-wide survey that took place in winter/spring 2017 and looked at whether austerity measures had impacted on services for disabled children and the professionals providing those services.

Read the full report [PDF]

RCN publication - Meeting health needs in educational and other community settings

Guidance for Royal College of Nursing (RCN) members who have a responsibility to plan for, or are required to safely meet the health care needs for Children and Young People (CYP) in various settings. Sets out key elements and factors for consideration and is applicable to health care professionals working with CYP up to the age of 25 years. The guidance covers CYP with both long term conditions and complex physical health care needs, including those CYP with life limiting and life threatening conditions.

Download: Meeting Health Needs in Educational and other Community Settings [PDF]

The 'So what - what next?' project

The So What, What Next? project was designed by the Transforming Care empowerment steering group. It looks at ways of supporting people with a learning disability or autism who have recently been discharged from hospital to explore their skills and passions and to find ways to contribute these to their local communities. Download the report from the LGA website.

Children's Rights Alliance for England (CRAE) -  a call for evidence on children's rights and briefing on mental health policy and practice

The Children's Rights Alliance for England seeks the full implementation of the Convention on the Rights of the Child in England. Our vision is of a society where the human rights of all children are recognised and realised.

Each year they produce the 'State of Children's Rights in England', which assesses the UK's progress on implementing the UN Convention of the Rights of the Child (CRC) and are currently calling for evidence on areas including: Education, Leisure and Cultural Activities and Health (including Mental Health), Disability. For more information see their website.

CRAE have also recently published a briefing on Using Children's Rights in Mental Health Policy and Practice [PDF] 

The briefing gives some background on the United Nations (UN) Convention on the rights of the child (UNCRC) and a 2016 report from the UN which highlighted concerns around provision of mental health services for children. For more information, use the link above or explore their website: