From information fairs and conferences to carer events, there’s plenty happening across Scotland this autumn for families with disabled and additional needs children. The Contact Scotland team will be at the following events and venues over the next couple of months – stop by for a chat and a friendly welcome wherever you see our stand!
Stanmore House School Family Support and Resource Fair, Lanark
Wednesday 24 September, 9:45am – 2pm at Stanmore House School, Stanmore Road, Lanark, ML11 7RR. Free transport from Lanark train station.
This free drop-in event is open to all families with disabled or complex needs children, whether or not they attend the school.
Look out for our Contact information stand, where our team will be ready to help and share support. Joining us will be lots of other local and national organisations who can offer advice and information on a range of topics relating to disabilities and additional needs.
It’s also a great chance to have a look around Stanmore House School, which provides education for children with complex needs and accepts applications from other local authorities out of the area.
By Your Side is our hospital-based service for families of disabled or ASN children and young people up to the age of 25 (with or without a diagnosis). Whether your child is staying in hospital or you’re there for appointments, we can provide information, guidance and a listening ear. We’re also here for hospital staff too.
Come and find us in the main atrium from 10am – 2pm on the following dates:
University Hospital Wishaw on Tuesday 28 October and Tuesday 25 November.
Queen Elizabeth University Hospital, Glasgow on Tuesday 21 October, Tuesday 11 November, Tuesday 9th December.
Transitions Information Evening, West Lothian
Thursday 16 October, 6–8pm at Howden Park Centre (doors open from 5.45pm).
The Contact Scotland team will also be part of this fantastic event, bringing together different services and organisations under one roof.
The event is being organised by Carers of West Lothian for parents of young people with additional support needs (aged 14–18). From grassroots volunteer groups to formal care agencies, colleges, and social work, it’s a great way to find out about the support and services available as a young person approaches adulthood.
Parents are welcome to bring their young person along too! There is step free access as well as a quiet space for those who need it.
Cerebral Palsy Scotland Conference and Exhibition 2025
Crowne Plaza Glasgow, Wednesday 8 October.
The 12th annual Cerebral Palsy Scotland Conference and Exhibition is free to attend. Scotland’s only annual event focusing on cerebral palsy, it’s open to anyone with experience of cerebral palsy – whether directly, as a family member, or professionally – and is a great opportunity to connect, share information, and learn from others in the community.
Have you ever wished you could speak directly to those in charge about the challenges of being a carer? The Carers Parliament 2025 gives carers the opportunity to share experiences and put questions directly to national and local Government decision-makers. And best of all, you don’t need to leave your home to do it!
The NHS is urging parent carers across the UK to check whether their child has had one or both doses of the MMR vaccine. This vaccine protects against measles, mumps and rubella, three serious illnesses that are spreading again.
Measles spreads easily and there have been outbreaks in England and Scotland this year, mainly in unvaccinated children under 10. This month, a child in Liverpool died after getting the disease. Summer is known to be a riskier time as families travel to countries where there are also outbreaks.
Health chiefs say it is very important that every child gets both doses for full protection. The number of children who have got the first dose of the MMR vaccine is nearly at target levels, but there is a big drop in the number of children getting the second dose.
The vaccine is free and available anytime, so if your child has missed one or both doses or is now older, it’s never too late to catch up.
How do I check if my child has had the MMR vaccine?
Look in your child’s Red Book under the vaccination section.
Call your GP surgery and ask them to check your child’s vaccination record
Speak to your child’s health visitor if they have one
How do I book an MMR Vaccine?
There are various ways to book an MMR vaccine depending on where you live in the UK. But in all four nations, the vaccine is free and can be booked at any time.
England: Call your GP practice to book. Some areas also have walk-in clinics which are listed on council websites.
Scotland: Contact your local NHS immunisation team (full list by area here) or contact your GP.
Wales: Contact your GP
Northern Ireland: Contact your GP or visit nidirect.gov.uk for local clinics.
Need more information or want to speak to someone?
Public health bodies say that some communities, such as ethnic minority groups, newly arrived migrants, and people whose first language isn’t English, face more barriers to getting vaccinated and have lower rates of vaccination. This can be for many reasons including not knowing how to get vaccinated and finding it harder to access information. It’s also understood that parents from all communities may have concerns about the vaccine and its safety.
If you’re worried or have questions, speak to your GP practice. They can explain the process and talk through any concerns you might have.
Useful resources
Easy-to-read leaflets and videos in many languages are available at:
Have your say in shaping health services and support in Scotland — two important consultations are now open for input from parents, carers, and individuals.
Consultation on Scotland’s Long Term Conditions Framework
Around 38% of people in Scotland live with the challenges of a long-term condition. These conditions can impact every aspect of life – from someone’s physical and mental health to relationships, finances and work.
The Scottish government want to hear from people to help shape its Long-Term Condition Framework so they better understand what matters most to people when it comes to prevention, support and equality for those living with a long-term condition.
We are delighted to announce that our Contact Scotland team have been awarded a grant of £97,774 over the next three years from the Health & Social Care Alliance (The Alliance) – the national third sector membership organisation for the health and social care sector, representing 3,500 members.
Contact Scotland will use the money to support unpaid parent carers in Scotland who self-identify as having a disability and/or health condition, to better self-manage their health.
The work carried out by our team in Scotland thanks to this funding is one of 31 projects who received a total of £1.9 million from the Alliance.
The funding aims to help support people in the early stages of a long term condition diagnosis, disabled people or an unpaid carer to develop skills to manage their own health and wellbeing and reduce barriers to health and social care support and services.
Susan Walls, Contact’s manager in Scotland says: “We are thrilled to have been awarded this funding which will help Contact Scotland support unpaid carers to better self-manage their health while caregiving for their disabled children.
“It is an incredible donation that will transform the way we support parent carers and we are so excited to be partnering with The Alliance to deliver this three-year project.”
Our Counting the Costs research found that most (87%) of mothers with disabled or additional needs children can’t work as much as they’d like to, often due to a lack of suitable childcare.
Local authorities have a statutory duty to provide out-of-school and holiday childcare for disabled children and children with additional support needs.
However, far too many families tell us that they struggle to find suitable or affordable childcare. This means parents struggle to balance care-giving with paid work, especially in the holidays.
The hour-long session takes place on Wednesday 30 October from 7-8pm. It aims to guide parents and carers through the process of securing school support for children with additional needs. The webinar will cover important topics such as children’s rights to support, how to work collaboratively with schools, and when pursuing a diagnosis might be beneficial.
Donna Tomlin, Contact’s Scotland Manager said: “When you realise your child may have a learning difficulty or health concern, getting a diagnosis can take time. In some cases, you may not get a diagnosis. We know that this can be a worrying and anxious time for families, so we are delighted to have the opportunity to join Enquire for a webinar where we can share our information and resources to help you get the right support for your child.”
The webinar is open to parents, carers, and their support networks.
A new Bill called ‘Calum’s Law’ reached the Scottish Parliament last month after a decade-long campaign by parent carer Beth Morrison.
The Bill aims to ensure that the restraint and seclusion of children and young people in schools is only used as a last resort, where there is an immediate risk of harm, and using appropriate methods.
De-escalate difficult situations
It also promotes compulsory training for all teachers on how to de-escalate difficult situations.
It is named after Beth’s son, Calum, who lost consciousness while being forcibly restrained at a special needs school when he was 11-years-old.
Beth is also the founder of Positive and Active Behaviour Support Scotland (PABSS), a non-profit organisation promoting the use of appropriate behavioural support for children and young people with learning disabilities.
Appropriate behavioural support
In the last school year, 208 families had been in contact to say their child had been physically and emotionally harmed because they had been subjected to the use of restraint and/or seclusion in Scottish schools. 91% of the children were autistic or had ADHD.
Contact Scotland continues to support Beth and PABSS in the campaign to make physical restraint guidelines in schools legally enforceable. Further information about PABBS including who to contact about incidents of inappropriate restraint, can be found at restraintreductionnetwork.org.
Universal Credit is the new benefit that is replacing the existing system of means tested benefits and tax credits – known as the legacy benefits. The process of moving existing legacy benefit claimants onto Universal Credit is known as managed migration. This process is now well underway with more than 60,000 claimants per month being asked to claim Universal Credit.
However, no-one is moved onto Universal Credit automatically. Instead, you will need to make a claim. Universal Credit have strict deadlines for you to do this by, if you want to be eligible for transitional protection payments to make sure that you are not left worse off.
Join us on 12 August
Join our special webinar via Zoom on Monday 12 August between 10 and 11.30am, to find out more about what you need to do once you receive a managed migration notice, asking you to make a claim for Universal Credit.
The webinar will look at:
What you need to do if you receive a ‘managed migration notice, telling you that your legacy benefits are ending and asking you to claim Universal Credit instead
The strict deadlines for claiming Universal Credit, if you want to be considered for transitional protection to make sure that you are not left worse off
How transitional protection can be lost due to certain changes in circumstances and how it is eroded over time
How to make a claim for Universal Credit and what the Department of Work and Pensions (DWP) will expect of you once you have lodged your claim
This webinar will be presented by benefits advisers from Contact’s Family Finance team. To find out more about this webinar and to sign up, visit our Eventbrite page. After registering, you will receive a confirmation email containing information about joining the webinar.
New to webinars?
A webinar is a presentation live on the internet. You will be able to hear the presentation live, follow the slides and submit questions for the presenters to answer. You will need a home computer, laptop, tablet or smart phone.
We have lots of information about managed migration to Universal Credit on our website. We will also post a recording of the webinar on our webpages, shortly after the event has taken place.
Carer Support Payment, the new benefit replacing Carer’s Allowance in Scotland, rolled out to Angus, North Lanarkshire and South Lanarkshire this week. The new benefit is the same rate as Carer’s Allowance and has similar qualifying rules.
New claimants
Carer Support Allowance was first introduced in the three areas of Dundee City, Perth and Kinross and Comhairle nan Eilean Siar (Western Isles). From Monday 24 June, it has been extended to Angus, North Lanarkshire and South Lanarkshire.
If you live in one of these six areas and want to make a new claim for Carer’s Allowance, you will need to claim Carer Support Payment instead. To claim Carer Support Payment, apply online via mygov.scot or by telephone Social Security Scotland on 0800 182 2222.
When will Carer Support Payment roll out to the rest of Scotland?
From 19 August, Carer Support Payment will replace new claims for Carer’s Allowance in Aberdeen City, Aberdeenshire, East Ayrshire, Fife, Moray, North Ayrshire and South Ayrshire.
It’s expected to be rolled out to the rest of Scotland from 4th November.
What about existing Carer’s Allowance claimants?
Social Security Scotland is in the process of transferring all existing Carer’s Allowance claimants in Scotland onto Carer Support Payment.
This process started in February. It is expected that all Carer’s Allowance claimants in Scotland will have moved onto the new benefit by Spring 2025.
Existing Carer’s Allowance claimants in Scotland will move onto the new benefit automatically. There is no need to make a claim or do anything else.
How much is Carer Support Payment?
Carer Support payment is £81.90 per week, the same amount as Carer’s Allowance. You should also receive an additional lump sum payment – known as the Carer’s Allowance Supplement – twice a year.
Most of the rules are identical to Carer’s Allowance. This includes the earnings threshold and the need to be looking after someone on certain disability benefits for at least 35 hours a week.
The main differences are:
More generous rules for students allowing carers in some forms of full-time education to qualify for Carer Support Payment, even if ineligible for Carer’s Allowance.
The amount of time someone must have spent in the UK before they can claim Carer Support Payment is 26 weeks out of the previous 52 weeks. For Carer’s Allowance, this is 104 weeks out of 156 weeks.
There are a number of situations in which you can get Carer Support Payment backdated. This includes potentially as far back as 19 November 2023 if you were unable to get Carer’s Allowance but do qualify for Carer Support Payment. See our webpage for more information.
Last year the Department for Work and Pensions (DWP) started the process of asking people on legacy benefits to move onto Universal Credit, even if they had no change of circumstances. This is known as ‘managed migration’ onto Universal Credit.
Initially only people on tax credits who weren’t getting any other means tested benefits were asked to migrate. However, the Department for Work and Pensions (DWP) has now started the process of asking people on other legacy benefits such as income support and housing benefit to migrate onto Universal Credit.
In the coming months hundreds of thousands of claimants will receive a managed migration notice telling them that their legacy benefits will be stopping and that they need to claim Universal Credit instead. However, you aren’t transferred onto Universal Credit automatically. Instead, you need to make a claim for Universal Credit and will have a deadline to do this by. If you miss your final deadline, you won’t be eligible for any transitional protection to make sure you aren’t worse off.
Confused about managed migration onto Universal Credit? Join us on 14 May
To help clear up any confusion, parent advisers from our Family Finance Team are inviting you to ask any questions you have about managed migration to Universal Credit at a special Q&A session on Tuesday 14th May between 10am – 11.30 am on our Facebook page. This session is for parents in England, Wales or Scotland. Different rules apply to managed migration in Northern Ireland.
The Bill aims to ensure better treatment and opportunities for neurodivergent individuals and those with learning disabilities.
Share your thoughts
The Scottish government has been working on this legislation for the past two years. It has been seeking feedback from a wide range of groups, including neurodivergent individuals and those with learning disabilities.
Now, it has opened a public consultation, inviting anyone in Scotland to share their views and experiences.
The consultation has identified a wide range of issues and topics, and these have been broken down into 14 specific themes. You can provide feedback on as few or as many of these themes as you wish.
How you can get involved
Provide feedback via Contact
We will be responding to the consultation directly, with a focus on the following five themes: relationships, health and wellbeing, education, transitions and definitions.
If you would like to contribute to our response, we will be running two online focus groups for parent carers on Monday 15th April at 10:30am -12.30pm and 6.30pm-8.30pm.
We want to hear about your experiences and views on any of the five themes mentioned above. We will use the insights gained to provide comprehensive feedback to the consultation.
If you would like to take part in one of our sessions please email Susan Walls, Head of Programmes at [email protected] by Friday 1st April.
Respond directly to the consultation
You can also respond directly to the consultation online or by video, post and audio.
Our By Your Side Scotland team are delighted to be out again supporting families in University Hospital Wishaw.
We know how physically and emotionally exhausting it can be when your child is in hospital. And how important it is to be listened to and get the right help when you most need it.
We also continue to provide support to families from our information stand at the Royal Hospital for Children (Queen Elizabeth University Hospital Campus), Glasgow. We’ll be there with our partners, the Family Fund and the Office for Rare Conditions Glasgow, on Wednesday 17th January from 10am to 4pm.
Remember – you don’t need a diagnosis to access our help, and we support families from birth to 25 years old.
This Sunday 19 November, a new benefit, Carer Support Payment, is rolling out in Scotland to replace Carer’s Allowance. The new benefit is paid at the same rate as Carer’s Allowance and will mostly have the same qualifying rules.
Below we explain what you need to know about the roll-out of Carer Support Payment.
Roll-out to new claimants
Initially, the new benefit pilots in the three areas of Dundee City, Perth and Kinross, and Comhairle nan Eilean Siar (Western Isles) only. If you live in one of these three areas and want to make a claim for Carer’s Allowance on or after 19 November, you will need to claim Carer Support Payment instead.
To claim Carer Support Payment in one of the three pilot areas, apply online via mygov.scot. You can also telephone Social Security Scotland on 0800 182 2222.
Social Security Scotland says that it plans a phased roll-out of the benefit to replace new applications for Carer’s Allowance elsewhere in Scotland. This is expected to start from Spring 2024, and the new benefit is likely to cover all areas of Scotland from Autumn 2024.
Roll-out to existing Carer’s Allowance claimants
For the time being, existing Carer’s Allowance claimants will continue to receive that benefit, even in the three pilot areas.
From February 2024 onwards, Social Security Scotland will gradually transfer existing Carer’s Allowance claimants in Scotland onto Carer Support Payment. This process will happen automatically without the need for you to complete a claim form. Further details about the timetable for transferring existing claimants is not yet available.
How much is Carer Support Payment?
Carer Support Payment is paid at the rate of £76.75 per week, the same amount as Carer’s Allowance. You should also receive an additional lump sum payment – known as the Carer’s Allowance Supplement – twice a year.
Most of the rules are identical to Carer’s Allowance. This includes the earnings threshold and the need to be looking after someone on certain disability benefits for at least 35 hours a week.
The main differences are:
More generous rules for students, allowing carers in some forms of full-time education to qualify for Carer Support Payment even though they would have been refused Carer’s Allowance.
The amount of time someone must have spent in the UK before they can claim Carer Support Payment is 26 weeks out of the previous 52 weeks. The rule for Carer’s Allowance is 104 weeks out of 156 weeks.
The Child Winter Heating Payment – formerly known as the Child Winter Heating Assistance – is a lump sum payment of £235.70 that Social Security Scotland pays to eligible households.
Who is eligible for the payment?
You get a payment for each child in your family aged under 19 who gets one of the following benefits:
To qualify, your child must have been eligible for one of these benefits for at least one day between 18 September 2023 and 24 September 2023. This includes if your child’s award was made after 24 September but was backdated to a date before then.
Receiving the payment
The payment is per child or young person, not per household. So if you have more than one child or young person on the relevant benefits, they will each get a payment.
You don’t have to make a claim for Child Winter Heating Payment. If you’re eligible, you will get a letter to confirm this, and you’ll receive the money into the same account as your child’s disability benefit.
Most payments are being issued during November, although some people may not be paid until December. If you think you are eligible but have not received a letter by the end of December, contact Social Security Scotland on 0800 182 2222.
Contact Scotland is working with partner organisations to host an information day for the Tuberous Sclerosis Complex (TSC) community next Saturday 30 September.
Join us at the Royal Hospital for Children, Glasgow, from 10am-3.30pm to find out more about TSC Support Scotland, the charity for families affected by TSC. Meet the team and find out what advice and support they can offer.
You’ll also have the chance to meet the Contact Scotland team and see what work we do to support families across Scotland, alongside the team from the Office of Rare Conditions Glasgow.
Find out more by telephoning 07513 853 080 or emailing [email protected]
From this week, families with disabled children in Scotland will have the chance to share their experiences of the Covid-19 pandemic, the government’s response and lessons for the future.
Let’s Be Heard is the independent Scottish Covid-19 Inquiry’s listening project, seeking answers to three key questions:
What were your experiences of the COVID-19 pandemic?
What impact did these experiences have on you or people you know?
What lessons do you think should be learned from your experiences?
The listening exercise forms part of the wider Scottish Covid-19 Inquiry, which is investigating the devolved strategic response to the pandemic in Scotland between 1 January 2020 and 31 December 2022.
Let’s Be Heard will also look at whether the government’s response impacted particular groups unequally or disproportionately. For this reason, we encourage families with disabled children in Scotland to take part. You might have views and experiences to share on issues like home schooling and support in education, shielding and masking, or the vaccination roll-out.
Child Disability Payment is the new benefit for children aged under 16 in Scotland, replacing Disability Living Allowance (DLA) in Scotland. Now our expert advisers have written a comprehensive guide to the new benefit.
Although Child Disability Payment looks similar to DLA in some respects, it uses slightly different rules to decide whether you qualify for the benefit, and at what rate.
Our comprehensive new guide Claiming Child Disability Payment takes you through what should happen if your child currently gets DLA, and how to claim Child Disability Payment if they don’t.
We also describe how to complete the application form, what tests are used to decide if a child gets it, with hints and tips on answering all the questions on the form.
Getting an award of Child Disability Payment can mean an increase in other benefits your family may be getting.
The Scottish Government have made clear that when they introduce a new carer support payment to replace Carer’s Allowance, they will initially keep the main qualifying rules broadly similar.
This will make the process of transferring existing Carer’s Allowance claimants onto the new Scottish benefit more straightforward.
The new benefit will be initially introduced as a pilot scheme at the end of 2023, before being launched across Scotland in spring 2024.
While most of the qualifying rules for the new benefit will mirror Carer’s Allowance rules, there will be two main changes introduced from the start of the pilot scheme.
These are:
Changing the education rules so that carers in full-time education can receive the carer support payment;
Amending the ‘past presence test’ so that carers will normally only need to have been present in the UK for 26 weeks out of the previous year in order to claim.
Once the Scottish Government has completed the transfer of all Carer’s Allowance claimants in Scotland onto the new carer support payment, it intends to make a number of other changes to the rules. These will include:
Increasing the ‘run on’ of benefit after a cared-for person dies from eight to 12 weeks;
Introducing an extra amount to be paid where a carer looks after more than one severely disabled person. Known as the carer’s additional person payment, this will be £10 per week for each additional person a carer is providing at least 20 hours of care to;
Providing temporary financial assistance known as ‘short-term assistance’ in some situations where a carer support payment decision is being challenged, or where the cared-for person is challenging a decision to stop or reduce their disability benefit.
At this point in time the Scottish Government has not committed itself to increasing the earnings limit.
Get the latest SEND updates, benefits advice, practical help caring for your child, plus free workshops and family events in our weekly email newsletter.
(Make sure you select ‘News updates’)
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