Top tip
If you are a new forum: You will want to look at Parent Carer forums – the basics and Setting up a forum
If you need any support finding what you need please talk to your Contact adviser
Read our Notes on the handbook
Chapter contents
About the handbook
About the handbook – contents
Parent carer forum handbook
The second edition of the handbook for parent carer forums.
Read more
Thank you
Thanks to everyone involved in the handbook development and more about Contact's role.
Read moreParent carer forum handbook contents
A list of the parent carer forum handbook entries.
Read moreHandbook Accessibility
This handbook is designed with flexibility in mind. You can easily print sections most relevant to you and share them with your…
Read more
How to feedback
Give feedback or comments on the handbook content.
Read moreDisclaimer
The guidance contained in this handbook and any template policies or procedures are for general information purposes only.
Read moreParent carer forums – the basics
Forums: the basics – contents
How forums began
A summary of how parent carer forums were first established
Read more
What is a parent carer forum?
How forums work in partnership with local services and reach out to local parents.
Read moreWhat all forums have in common
Forums have a unique role: they represent the views and experiences of families with children and young people with special educational needs…
Read moreParticipation and co-production
The purpose of parent carer forums is to work in partnership, collaboration, or co-production with local services.
Read moreParent Carer Forums and campaigning
Both are working to affect change, but they approach their work in different ways.
Read more
National Network of Parent Carer Forums (NNPCF)
In this section, we look at the role of the NNPCF that all forums are a member of.
Read more
Success stories: parent carers making a difference
Take a look at some examples of success stories that Parent Carer Forums (PCFs) have shared with us highlighting some of their…
Read moreFind your local parent carer forum
View the full list of parent carer forums and their contact details.
Read moreSetting up a forum
Setting up a forum – contents
Setting up a steering group
How to set up a ‘steering group’ to get things up and running in a forum.
Read more
Aims and objectives
Agreeing aims and objectives ensures that everyone involved in the group understands its purpose.
Read moreMembership
Information on why and how to collect and safeguard wider forum membership information.
Read more
Equality, Diversity and Inclusion and reaching out further
Information about reaching communities whose voices are not heard, sometimes referred to as ‘seldom heard’ or ‘under-served.’
Read moreDeciding on a structure
How a forum is set up, with different structures to choose from, is important to consider.
Read moreUnincorporated associations
An unincorporated association is not a legal entity, but an organisation of two or more where the membership may change from time…
Read moreRunning under the umbrella of another organisation (hosting)
Information on hosting and some of the advantages and disadvantages of being hosted.
Read moreCharity
Definition of what a charity is, the Charities Act 2011 along with some advantages and disadvantages to becoming a charity.
Read moreCharitable incorporated organisations
Find out how they are set up and some advantages and disadvantages.
Read moreCommunity Interest Company (CIC)
A community interest company (CIC) is a limited company which exists to benefit the community.
Read more
Supporting each other
Take a look at our useful information for the forum's leadership team on how they can support each and work as a…
Read moreHolding an Annual General Meeting
AGMs are a good way to tell the wider parent carer membership the achievements and work you have undertaken throughout the year.
Read moreLegal requirements and best practice for forums
This section looks at Insurance, DBS checks and forum contact details.
Read moreRunning the forum
Running the forum – contents
Managing the forums finance
Introduction to good governance for the forums finance.
Read more
Grants and monitoring
Important information on grants and monitoring for parent carer forums.
Read moreGood Governance
Information for forums on good governance.
Read more
Policies and Procedures
Find more information and downloadable templates for policies and procedures.
Read moreRoles and responsibilities
Information to support forums with the development of its roles and responsibilities.
Read moreManaging staff and self-employed people
Information for forums on how to recruit and manage staff. It also looks at the rules around employment and self-employment.
Read moreManaging volunteers
Information for forums on how to manage volunteers so they feel valued members of the forum.
Read morePaying people in the forum
Information for forums about paying people including staff, self-employed and volunteer expenses.
Read moreSupporting people working for the forum
How to support people working for the forum, including using reasonable adjustments and supporting neurodivergence.
Read moreGeneral Data Protection Regulation (GDPR) and Privacy
This section looks at the rules around storing data and signpost forums to resources.
Read moreWorking in partnership
Working in partnership – contents
Working with Local Authorities
Including strategic boards, working groups and task and finish groups.
Read more
Working with elected members
Information on forums working with elected members of local authorities such as cabinet or executive board members.
Read moreHealth systems
Further information on how local health services are provided in England and organsiations responsible for Services, ICBs and NHS England.
Read moreHealth information helpful for forums
Information useful for forums working on service design of health services.
Read moreHealthwatch
Information for forums Healthwatch and good practice guidance on working with them.
Read more
Working with other local groups
Different ways that forums can work with other local groups involved with the forum.
Read moreDesigning and reviewing services
Information about commissioning including strategic planning, procuring services and monitoring and evaluation, and how forums can help.
Read moreLocal offer
Introduction to the statutory duty, the local offer, introduced under the Children and Families Act 2014.
Read moreOFSTED and CQC SEND area inspections
Information useful for forums on the OFSTED and CQC SEND area inspections and the forum's role.
Read moreSpecial Educational Needs and/ or Disability Information, Advice and support services (SENDIASs)
In this section we look at how forums can work with their local SENDIASs service.
Read moreCommunication and gathering the parent voice
Communication and gathering the parent voice – contents
Collecting parent carer voice
Information useful for forums on how they can gain the voice of parent carers in their area.
Read more
Equality, Diversity and Inclusion and reaching out further
Information about reaching communities whose voices are not heard, sometimes referred to as ‘seldom heard’ or ‘under-served.’
Read moreSocial Media
Social media can be a powerful tool that forums can use to reach parent carers.
Read more
Branding
Branding can help forums to develop a clear identity and communicate their vision.
Read moreWorking with media
Information on how forums can engage with parent carers, raise awareness of their activities and purpose, and foster a supportive and inclusive…
Read moreDeveloping a communication plan
Information on how forums can develop a communication to help them reach parent carers in their local area.
Read moreSupport for forums
Support for forums – contents
Contact website
The Contact website holds a wide range of information which can be helpful for parent carer forums.
Read more
Contact Parent Carer Participation Advisers
Parent Carer Participation Adviser's support the forum and provide a sounding board for the forum leadership. Find your forum's named adviser here.
Read more
NNPCF website and social media
View information available to all forums via the NNPCF website and social media platforms.
Read more
Community Matters
Find out more about Community Matters support offer.
Read more
CIC Assistance Programme
The CIC assistance programme is designed to help forums to carry out their role while maintaining their wellbeing.
Read moreContact Associates
Associates are freelance consultants with a range of skills that can support forum development.
Read more
Contact’s training offer
Contact offer bespoke training for forums above the core offer. In this section we discuss what is available.
Read moreFind your local parent carer forum
View the full list of parent carer forums and their contact details.
Read more
Other national sources of information
Information for forums regarding organisations which may be useful when working on co-production.
Read moreManaging difficult situations
Managing difficult situations – contents
Complaints
Information useful for forums on how they manage and respond to complaints.
Read more
Building and maintaining effective partnerships with external agencies
We look at how forum's can maintain a working relationship with service providers to enable them to influence change.
Read more
Managing internal conflict
Sometimes there may be differences of opinion within forum and this page provides information on steps to avoid and manage this.
Read moreConflicts of Interest
Conflicts of interest can happen for forums and it is import to understand how to manage these.
Read moreSubject Access requests and Freedom of Information requests
Information for forums on how to manage requests about data such as SARs and FOI.
Read moreManaging bullying, harassment and stalking
While very few forums experience bullying, harassment or stalking we discuss what to do if this happens.
Read more
CIC Assistance Programme
The CIC assistance programme is designed to help forums to carry out their role while maintaining their wellbeing.
Read moreDeveloping existing forums
Developing existing forums – contents
Forum health check
Information for forums on taking time out to reflect on how the forum is doing and to review the forums priorities.
Read more
Supporting each other
Take a look at our useful information for the forum's leadership team on how they can support each and work as a…
Read more
Saying yes (and no): choosing where to focus your forum’s energy
Information for forums on how to mange workload and build capacity.
Read moreCreating space to reflect
Information for forums on taking time out from their normal work to reflect on how the forum is doing and celebrate success.
Read moreLeading your forum through change
More information about managing change and succession planning for forums
Read more
Building and maintaining effective partnerships with external agencies
We look at how forum's can maintain a working relationship with service providers to enable them to influence change.
Read moreDo you have any thoughts about this page? Visit our How to feedback page to share them.
Looking for something else? You can find a full list of pages on our Parent Carer forum handbook contents page.